Trick or Donation

It’s finally the month of October and that means that many of you are getting ready for cooler weather and preparing for the holidays! Here at the Kidney Foundation we are gearing up to host plenty of great events aimed at giving back to our patients and raising funds which go directly towards supporting vital programs. Learn more about these events and how you can participate or get involved in supporting our patients and programs by checking them out via our website or contacting our local office at 504.861.4500.

This holiday season you can also help us by choosing to shop AmazonSmile anytime you need to make a purchase. AmazonSmile is a simple and automatic way for you to support us every time you shop, at no cost to you. You’ll find the same low prices on decorations, costumes, greeting cards, gifts, and much more, in vast selection and the same convenient shopping experience as Amazon.com. If you already have an Amazon account you can use it to access your same settings and make purchases using your shopping cart. The best part is, by selecting us as your charity of choice when you shop, Amazon donates 0.5% of the price of your eligible AmazonSmile purchases back to the Kidney Foundation.

So give us a real thriller this Halloween by helping us to raise some scary funds! Simply visit: smile.amazon.com for your next spine tingling shopping experience.

Give something better than a treat this Halloween and donate to your favorite local non- profit by visiting http://smile.amazon.com/ch/72-0649707 

 

 

  

 Join Us for a Great Night for a Good Cause!

 

 

NKF, ASN, ADA form consensus conference to combat diabetic kidney disease

 The National Kidney Foundation, the American Diabetes Association, and the American Society of Nephrology have collaborated and developed a consensus conference that brought together experts in nephrology and endocrinology to review current practices, and to identify knowledge gaps, research opportunities and ways to improve clinical outcomes related to kidney disease in diabetes.

Approximately 50% of new kidney failure cases are caused by diabetes and it is estimated that more than 60% of dialysis patients have diabetes.

“Care for diabetic patients is very challenging. Kidney disease is one of a number of comorbidities that need to be managed,” said Thomas Manley, director of scientific activities at the National Kidney Foundation. “The presence of reduced kidney function has been shown to be a significant risk factor for end-stage kidney disease, cardiovascular disease, and mortality in the diabetic patient. It is therefore important to develop new therapies and management protocols to prevent and slow progression of diabetic kidney disease.”

The report on the deliberations from the joint consensus conference held in 2014 has been published in the October issue of the American Journal of Kidney Diseases, and Diabetes Care.

The highlights of the conference include:

  • The need to investigate the mechanisms underlying the development of kidney disease in diabetes.
  • The development and identification of new biological markers that will not only help detect early signs of kidney disease, but will also inform drug development.
  • Comprehensive studies to examine the effectiveness of different medications on glycemic control, lipids, blood pressure, and other cardiovascular risk factors in patients at various stages of kidney disease.
  • Further study on the rates and consequences of hypoglycemia in people with diabetic kidney disease, identifying people at highest risk for hypoglycemia and optimal treatment strategies for patients with diabetes and CKD who are at high risk for hypoglycemia.

“Diabetic kidney disease is one of the most serious complications expected to escalate with the sweeping, worldwide pandemic of diabetes,” said Dr. Katherine R. Tuttle, co-chair of the consensus conference. “Action now is essential to mitigate staggering personal, financial, and public health costs for people with diabetes.”

Read the full report.

 

 

PD Solution Shortage NKF Letter to FDA

 

September 18, 2014

Margaret A. Hamburg, M.D.,

Commissioner of Food and Drugs

U.S. Food and Drug Administration

10903 New Hampshire Avenue

Silver Spring, MD 20993

 

Dear Commissioner Hamburg,

The National Kidney Foundation (NKF) is concerned about the affect that the recent

shortage of peritoneal dialysis (PD) solutions is having on current and future patients. NKF

is America’s largest and oldest health organization dedicated to the awareness, prevention,

and treatment of kidney disease for hundreds of thousands of healthcare professionals,

millions of patients and their families, and tens of millions of people at risk.

In 2011 there were nearly 32,000 patients in the U.S. who received PD,

but that number

has increased exponentially over the past three years, particularly as Medicare

reimbursement incentives were designed to lead to this increased use of PD. The dramatic

increase in demand for PD has caused a current shortage in PD solutions, which affects

current and future patients. Current PD patients have reported experiencing disruptions in

the delivery of their supplies, some have received only enough PD solution to get them

through a few days at time, which hinders their ability to travel – one of the benefits of being

able to do dialysis on their own.

We have also heard from nephrologists that there are a number of patients ready to begin

dialysis, who have already had their PD catheter placed, but they have been unable to start

dialysis due to the shortage of PD solutions. These patients may have to undergo another

procedure to have a central venous catheter placed in order to start hemodialysis. Not only

does this pose a significant burden to patients, it also puts them at greater risk of

hemodialysis-catheter-related infections and even death. In contrast, treatment with PD

confers a significantly lower association with hospitalization for blood stream infections and

death in the first year of dialysis. In addition, patients waiting to begin PD will most likely

need to go to a hemodialysis center for their treatment, requiring them to face a significant

lifestyle change that they had opted to avoid by choosing PD has their home dialysis

modality. For rural patients the nearest dialysis facility may be many miles away and they

may not have reliable access to transportation again putting their health, or even their lives,

at risk if they are forced to miss treatments due to transportation challenges. Compared

with other dialysis patients, those who missed one or more dialysis sessions in a month had

a 25% higher risk of death.

For some patients PD may also be the only option for dialysis

due to other comorbidities.

For these reasons we strongly urge you to expedite your consideration of allowing

importation of PD solutions from countries where manufacturing facilities have an

established track record of safely supplying patients in those countries with their PD

solutions. We are hopeful this will alleviate some of the access challenges for current

patients and those waiting to start therapy until manufacturing in the U.S. can increase to

keep up with demand.

If you have any questions or would like to discuss this issue further please contact Tonya

Saffer, Senior Health Policy Director at 202.244.7900 extension 26 or by email at

tonya.saffer@kidney.org.

Sincerely,

Beth Piraino

 

 

 

Give a Little More With #GiveHOPELA

The National Kidney Foundation of Louisiana is dedicated to improving the health and well being of individuals suffering from kidney disease. With your help we have been able to raise much needed funds and receive support which goes directly towards  fulfilling our mission each year.

Join us in a new campaign brought to you by the Louisiana SCCC designed to give state employees the chance to contribute to qualified health and human service non profits with the option of payroll deduction.

A $10 contribution can provide a screening and consultation with a medical professional, giving them a clinical action plan to stop the progression of kidney disease and prevent dialysis, thereby improving quality of life.

Learn more by visiting  http://www.lasccc.org/.

 

 

 Walking- A Natural Way To Prevent Chronic Kidney Disease

In recent surveys conducted by Statistics Canada, it was found that approximately 30% of the population reported walking regularly (four or more times per week) and that 70% walked at least once in the past three months. Naturally, walking is a simple activity for enhancing health and well-being.  In fact, in a recent study by the Pennington Biomedical Research Center on the relationship between steps/day and metabolic health, it was found that approximately 56% of people in the lowest category of steps/day had metabolic syndrome (defined by having the presence of three or more cardiovascular disease risk factors) compared to only 13% of people in the highest steps/day group.

Furthermore, the odds of having metabolic syndrome was 10% lower for every additional 1000 steps/day people took.  So, even though moderate and vigorous levels of physical activity is important to one’s health, the total amount of physical activity as measured by steps/day is also a significant factor.

Action Tip: 
If you have a pedometer, track your daily steps over the next three days to determine your baseline average steps per day, and then see if you can increase that number by 1000 steps/day.  If you don’t have a pedometer, create a personal route that you routinely walk on your activity tracker and count the steps total.  At the end of three days, extend your route by an extra 1,000 steps!Source: Taking Steps to Improve Health by Walking Peter T. Katzmarzyk, PhD, Associate Executive Director for Population Science and Louisiana Public Facilities Authority Endowed Chair in Nutrition, Pennington Biomedical Research Center, Baton Rouge, LA. Research UPDATE published by the Alberta Centre for Active Living March 2011.

Get Registered NOLA!

It’s time to get registered for the 2014 New Orleans Kidney Walk! You can start now by registering and raising funds as an individual walker, volunteer, or team captain!

Simply click the following link to begin taking lifesaving steps http://donate.kidney.org/site/TR?fr_id=6833&pg=entry.

 

 

THANKS NATIONAL KIDNEY

FOUNDATION of LOUISIANA !

We had a great time at Camp Shining Stars!   Check out our Video to see how much fun we had!

Your secure donation from our “Make a Gift” tab or submission by mail is still being accepted throughout the year as we plan for our 2014 Camp.

 

 

 

 

2014 TOURNAMENT SCHEDULE :

Monday, April 13, 2015- 18th Annual Alexandria Golf Invitational benefiting the National Kidney Foundation @ OakWing Golf Club

Monday, November 3, 2014- 24th Annual New Orleans LMI Invitational @ Chateau Golf and Country Club in Kenner

Monday, November 10, 2014 – 19th Annual Lafayette LMI Invitational @ Oakbourne Golf and Country Club in Lafayette

Enjoy a great day of golf with your friends. Your support raises money for the Foundation’s programs and services. In addition, you can compete for the opportunity to play at Pinehurst, home of the 2014 U.S. Open and the U.S. Women’s Open. Please contact  David Warner to register.

 

 

 


The Louisiana Healthcare Education Coalition (LHEC) was founded to help Louisianians better understand the Patient Protection and Affordable Care Act (PPACA).  As a civic organization committed to providing unbiased healthcare and wellness information, LHEC will educate on the major drivers of healthcare costs, the critical importance of personal wellness and the need for access to quality healthcare by working with healthcare providers, small businesses, faith-based institutions, employers, community leaders, patient advocacy groups and the public.  LHEC exists solely as an educational resource.  It neither endorses nor seeks to create public policy. You may visit their website www.lhec.net

Say Yes! To Organ Donation

Become a donor by signing up on the Donate Life Louisiana website. When you say Yes! on your driver’s license, you are then registered as an organ, eye, and tissue donor.